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Monday, February 1st, 2010
8:08 pm - For those of you in the UK

cleodora
BBC1 will be showing a programme about selective mutism tomorrow (Tuesday) night at 10.35pm. You can find out a bit about the programme here. If you miss it, you can watch it on the BBC Iplayer, programmes usually stay online for about a week, I think.

PS The iplayer isn't available to those who live outside of the UK, but if you really want to see it, do some googling and I'm sure you'll find a way round it.

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Tuesday, December 18th, 2007
9:28 pm

grrl_next_door
hey guys...
this community doesn't look very active but I thought I'd give it a try!

I'm a student teacher, and a girl in my grade 3 class has selective mutism. I was wondering if anyone has some insight on how to help her get over her fear to speak or possibly any resources (I'm in Ontario, Canada near Toronto).

Thanks!

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Sunday, May 20th, 2007
2:26 pm

sydthesquid23

I have  a new blog: 
http://thesarcasticwhiteboardchronicles.blogspot.com/ 

yup...aaaand I'm thinking about putting together a book of collected poetry/stories/whatever from people with SM. I'm totally up for doing it if I can find enough people to contribute. 

Oh, and I may be starting meds soon. Anyone have any advice for me? I'm still not speaking to anyone except my mom,dad,  and sisters. It's been like this since I was about 5.

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Tuesday, March 6th, 2007
2:12 am - help

maehelen
I have a sister, "H" who I'm unable to talk to. I want to find some appropriate words for the blank Birthday card I'm giving her in four weeks.

Last Christmas I surprised myself and apparently her as well when I hugged her in thanks for a necklace that she gave me. I'd like to shorten the bridge between us. We're ten years apart, and I'm still single and without kids, that's not a whole lot to relate with each other here.

Would deeply appreciate any input whatsoever for her card.
Much thanks anyway.
Till next time, Mae.

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Friday, February 23rd, 2007
4:44 pm - clueless

maehelen

It never occurred to me to seek out anyone who might also be dealing with this.

I'm 25 and have had SM for as long as I can remember. 
It's only within the past 4 years that I've been able to put a name to the face of my problem.
I suppose I'm more willing to share with people who actually understand what I'm going through.

Some things about me that set me apart growing up:
Throughout grade school I joined several different groups.
1. Indian Guides with my mom, My Shawnee name was Little Shy One.  My mom's was Minnehaha (translation Laughing Water). This went on from second to fifth grade I'd say.
2. From second to fourth grade I took a jazz dancing class after school.
3. In fifth grade I was in band and played flute. (Mom's from when she played flute in school. Kind of wished I kept it up.)
4. Here's the kicker sixth grade. fall CHOIR. after my first school performance of which I never felt more confident, I half expected "good job" from the other kids. Instead I heard "So you can sing but you can't talk." When spring auditions came around, I didn't go.
5. High School. Maybe sophomore possibly Junior year. I had some poetry posted in the school Lit Magazine. Got some comments on that especially by those trying to interpret my work literally. I actually talked to a few teachers during my time there and my Counselour.
6. College. Happy to say I've done better. And worse. I'm lucky they have online classes. So I can write till everyone's eyes bleed. My very First and Only semester I managed to speak when spoken to. Other than that I didn't really start conversations myself. I'll have to work on that.

That was fun. 
Hope this was a decent introduction. 
Thanks.



current mood: hopeful

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Wednesday, December 27th, 2006
10:25 am - I'm so sick of this...

sydthesquid23
To reflect the involuntary nature of this disorder, its name had been changed to selective mutism in 1994. However, misconceptions still prevail; for instance, the ABC News erroneously attributed the cause of selective mutism to trauma and described it as willful in a report dated May 26, 2005.

current mood: crushed

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Sunday, December 17th, 2006
1:16 pm - YAHOO 7: El's battle with selective mutism

laura1287
Here is an article (deviated from a television program on Yahoo) that fits this community.

Under the cutCollapse )

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Saturday, November 25th, 2006
3:57 pm

cleodora
Back on the 10th of April this year, there was a documentary on Channel 4 (in the UK) called Help Me To Speak about selective mutism and apparantly it has been repeated on More4 since. I saw it at the time and found it really interesting, and I'd really like to see it again.

Does anybody here know where I can download it, or have a copy they could copy for me? I can record video onto DVD, so if you had it on video and wouldn't mind lending to me, I promise I'd take good care of it and send it back promptly and I could make another DVD copy for you if you wanted.

current mood: hopeful

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Saturday, October 14th, 2006
3:39 am

sydthesquid23

Hi, my name is Sydney. I've posted here a few times before. I'm 16 and still struggling with SM. I've made the decision this year to begin medication. I've never been on any meds for my psychological problems, so I was just wondering what it's like. I've heard some horror stories and some positive one's too. Does anyone have any recommendations?

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Wednesday, July 12th, 2006
12:19 pm - introduction

silentsongheart
Hello.My name is Leela and I am a 17-year-old girl from the United States.

I am non verbal(I cannot verbally speak) and I walk with a cane.I have been non verbal and partially crippled ever since I was four years old.I had a stroke at age four and it paralyzed my vocal cords and ruined my balance and coordnation.I regained back most of my balance but I have trouble with my left leg so that is why I walk with a cane.It took me about 3-4 months to become fluent in ASL(that is what I communicate with).

My AIM screen name is SilentSongHeart is anyone wants to talk.Hope I can make new friends here!


Sincerely,Leela

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Tuesday, July 4th, 2006
5:47 pm - Hello =D

wordremedy
Hey guys,

Hope everyone is doing good! I wanted to join because, although undiagnosed, 99.99% evidence suggests that as a child I had Selective Mutism,

definitely isn't as bad now that I'm older but there are ocassions and situations where it is painfully evident that I am not as yet completely over it.

It's annoying isn't it.

I blame the genetic aspect involved that has lead to me developing SM which kind of meant that I was effed right from the go...

I think the fact that it is really not very well known contributes to the problem as the lack of awareness prevents necessary intervention for a lot of undiagnosed children and in turn not enough is known to deal with Selective Mutism in helping sufferers overcome it.

I could tell you story after story detailing how I was wrongfully treated as an SM sufferer, mainly by adults, teachers, parents etc. outlining the need for SM to become more well known and the need for more research and remedies!

I remain hopeful =D

Some people out there are doing things about this... those that are aware of SM that is! There are websites and books around and now there are also wristbands being sold to raise awareness! I ordered one myself and am waiting for it to arrive, I want to make a difference and I want to raise awareness, I'm going to wear the wristband for the child in me and the sufferers of SM all around.

I want people to know what Selective Mutism is!

If anyone is interested: http://sm.aware.tripod.com

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Saturday, April 15th, 2006
8:33 pm - language classes

ex_komarain555
I'm really bad at introductions, so I'll keep this bit brief. I haven't actually been told I have selective mutism, but I have real problems talking to certain people in certain situations - teachers, people I don't talk to regularly, anybody on the phone (even family), even little things like answering the register at school - and yet can joke around with my close friends or family. I tend to just avoid all situations where I'd find it difficult to talk (I haven't been at school for a year for various reasons, probably including this), but I'm seeing a psychologist for other stuff and often just sit there for an hour without saying a word, even though I want to, my voice just...doesn't seem to work (and I end up almost exclusively telling her stuff by writing it down).


Anyway, I was just wondering how people had handled language classes or courses with oral exams. I find languages really interesting and love learning them, but for GCSEs, A levels or Open University courses part of the grade comes from an oral exam, something I seriously doubt I would be able to do, but I can't really think of any way around it, since the exams are compulsory and a significant part of the grade.

Anyone got any ideas?

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Sunday, April 9th, 2006
8:17 pm

cleodora
I don't know how many UK people there are here but in case there are any apart from me -- there's a documentary about selective mutism on Channel 4 tomorrow (Monday the 10th) at 9pm :]

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Monday, February 27th, 2006
12:41 am - Friends Only?

ciaracat
laura1287 raises an interesting point.

Would y'all be more comfortable if this Community were friends-only? Would this feel like a safer place to talk if that were the case?

current mood: sore

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Tuesday, February 14th, 2006
5:02 pm

happy_raisin
Hey, don't know if anyone's seen it but there's an article on selective mutism in this months Time magazine, its also on their website if you're a subscriber.

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Thursday, July 28th, 2005
2:33 pm

sydthesquid23
Hello, it's Sydney again (i posted earlier in here as punkybrewster23). I'm posting again because I'm trying to write a piece about SM for my zine and wanted to include stories of people who have it (myself included). If anyone is interested they can send their story to me at sydthesquid23@yahoo.com
You can change names or leave them out. It can be annonymous. Whatever you're comfortable with.

Thanks,
Syd

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Thursday, June 16th, 2005
11:48 pm - Me

lutze3
Well, today a person my Mum found on an SM site who I've been talking to about SM for a while now, wrote a story about it today.

And it made me feel particularly sad, because the story is almost exactly the same as me, except that I seemed to be more invisible to people than she's been.
People tried to help her (mostly in ways that made it worse) and other kids bullied her for it.
But I've never really experienced either of these untill recently.
Where it almost feels like both coming from my parents.

[insert warning here]

I'm 17 now.
My Dad's Dad died when he was around 15. And not long before then, when he was dieing (which took 3 years I think) he became angry with my Dad, and blamed him for the illness that was killing him.
And because my Grandad died soon after that, my Dad had that on his head all the time. And he only told anyone about it a few years ago.
(This piece of information becomes neccesary later on)

I started out life living in London, a few months before I was 2 years old, I became an older brother.
Around then, doctors decided I had glue ear.

And my earliest memory (a few months after this) is of being awake with tinitus and giving up sleeping to go downstairs to watch Star Trek.

I have had a total of 7 opperations on my ears to try to correct the glue ear. I was supposed to be "cured" 5 years ago. And now, they've written me off as a bad job.

My Pre-School was a school for deaf children, where most of the kids didn't talk much on account of being a graduation of deaf.
And I don't ever remember talking there either.
Except possibly to Sue (who was one of the teachers).

In Primary school, my Mum looked after a boy after school, and he became my friend.
In that school, I distinctly remember having 3 friends.
The first, JK (the afore-mentioned) who I would talk to sometimes in school.
There was Douglas, who left soon after he became a friend.
And then there was Adam. He talked to me sometimes.

I think I've only ever been in trouble four times in school. And the memories of them don't bother me quite so much these days.

What seems to happen for me, is I've always attatched myself to someone who I feel comfortable talking to, then only ever talk to them, and then siphon off the rest of "normality" by hanging around the person and listening in to everyone else.

I haven't been diagnosed as having SM.
But, I think it was suggested soon after I was discharged from the Child psychologists.

Untill a few years ago, it was only away from home that I didn't talk except to the "safe" people.
But a few years ago, I stopped talking to anyone.
And only whispering to the "safe" people.

And it was only when this came into the home as well that my parents noticed anything wrong.

Because of the things that happened to my Dad, he doesn't want to feel that he's given me his psychological problems, so he is adamant that it is a completely physical reason that I don't talk to anyone.
Which is why I haven't been diagnosed by anyone formally.

Untill recently, it hasn't really struck me that this has really been going on all my life, because I have created my own "normallity"
And this is because in Primary, and Secondary Schools, my "safe" people were in the bulk of my lessons. And at break times I could always listen in to their friends.

But now I am in college, the "safe" person is no longer in may of my classes.
And he talks to me far less now.
And as a result of poor hearing (see above) and various other things, I can no longer hear enough of what his friends say.
And he is around at break times less too, as he used to listen for me, then distill the conversation and tell me it. So now I have reallised how outside I am from them.

And my reasons for coming here, is so that I can try to get some more pieces to fit in.

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Thursday, June 9th, 2005
11:09 am
sliding__down Hello all... Only a few months ago I found out I have Selectief Mutisme (Selective Mutism, sometimes I get tired of those 2 words). I'm actually quite happy for finding this community, so I can talk to people who really can understand me. I am 17 years old and I'm from The Netherlands. As far as I know I've had SM all my life. My father had it (he died 3 years ago, unfortunately) but not as bad as I have it... Why me? Also when I didn't know about that I had it I used to get bullied for it at school. For example people in my class said things to/about me when they knew I might not answer them. So they said that I was rude, etc. Now I think about it, it was really frustrating not knowing what was "wrong" with me. With all the bullying and my father passing away I didn't talk about it so it's all inside me. =( I have someone at school helping me, and they want me to go in therapy, but really what is the best thing to do? =( May I ask what kind of medication people on here use? I used to take anti depressants but it didn't really help. I hope I meet someone here who I can talk with, it'd be really nice to have someone completely understanding what I'm feeling.

current mood: sad

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Wednesday, June 1st, 2005
3:52 pm

itsbetter06
Hi. Im 17, and have SM. I've never been officialy diagnosed with it (my parents thought a therapist would be a good idea but I had to remind them that I wouldn't be able to talk to one) , but after reading about the symptoms/signs I know this is me. I only recently found out about this 2 weeks ago when there was something on TV about a girl who had it. I went right online and had to find out more about it - sure enough, this is exactly what life is for me.
The hardest part about this is when people assume I'm doing this to be rude or when people think I can control it. "She thinks she's too good to talk to us". You don't know how bad I wish I could talk to you. "Just say HI. H-I is only two letters. Is it that hard to say?" Obviously, it is if I can't say it infront of you. I've even had a doctor say to my mom that I only don't talk for attention. Yes, I just love the attention I get. (Please catch the sarcasm). My parents still try and punish me for not talking. I don't understand how they think that I do this on purpose, like I choose to be this way. I think it hurts the most when the people who are supposed to be understanding are making it harder for you. They tell me I don't know how much I hurt them - but they have no clue how much they hurt me by forcing me to try and be social. No matter how many time I try to explain to them "I just can't say anything" all I get back is a "Well, you BETTER say something!"
This community looks pretty dead, but hopefully I'll meet some people on here who I can relate to. It's nice to know I'm not the only one suffering.

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Friday, April 22nd, 2005
5:13 pm - Meds

songsmith

Several of us are on medication for anxiety/depression. A couple of you have mentioned wanting to get on something, or your parents wanting you to take something... or something like that.

There's a naturopathic remedy for depression with no long-term side-effects called SAM-e. Here is a link that has some good info: http://www.healingdaily.com/conditions/sam-e-1.htm

I'm on Wellbutrin XL, but you can take SAM-e with other anti-depressants, as long as they are not MAOI inhibitors; also, don't take it if you are bipolar, as it increases mania. I notice a difference when I take it... I have less social anxiety! I'm hoping to get off Wellbutrin and just take the SAM-e, but i need my doctor's advice for weaning myself off the wellbutrin. Anyway, that's not important to you all.... What is important is, you can get SAM-e over the counter at pretty much any pharmacy. You don't have to go to a health food store or GNC or anything like that; I got it at Kroger! However, if you take it, you have to also take vitamin B. The link explains all about why that is. And, if you want to try it, make sure you get a good brand, and not just the generic Kroger or CVS brand. That's fine for acetomenophen, but not for something like this. Get a good brand for the vitamin B too. The copay for a 30-day supply of wellbutrin for me is $50, and I can get a 30-day supply of 200mg SAM-e and vitamin B complex to go with it for around the same amount of money, and I'm not harming my liver and kidneys, nor do I have to go to the doc and be evaluated every 3 months. (Which is ridiculous anyway... and it's another $25!) Anyway, I thought I would offer this idea to those of you who feel the need to be on medication and cannot get it, for whatever reason. But be sure to read all you can on it. If you have a homeopath or naturopathist, talk to him/her about it too.

Got to go... time to leave work!! Yall have a good weekend. :) Oh, and feel free to ask me questions about it. I'm learning myself, so half my answers might be "good question... I dunno." But it's all good.

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